TB Research

From Raw Data to FAIR Data: The FAIRification Workflow for Brazilian Tuberculosis Research

Filipe Andrade Bernardi, Vinícius Lima, Gabriel Sartoretto, João Baiochi, Victor Cassão, Afrânio Lineu Kritski, Rui Rijo, Domingos Alves

Studies in health technology and informatics · 2023-06

Abstract

Among the main factors that negatively influence the decision-making process, it is possible to highlight the low quality, availability, and integration of population health data. This study aims to highlight the difficulty of research based on tuberculosis data available in Brazil. The FAIR methodology is a solution for standardizing data and sharing information about the disease. All the main actors involved, including those who generate data and administrators of information systems, should be encouraged to know their strengths and weaknesses. Continuously fostering strategies to promote data quality is, therefore, a strong stimulus for strengthening national health information systems and can potentially benefit from recommendations on how to overcome the inherent limitations of these information systems. Data quality management in Brazilian tuberculosis information systems is still not carried out organized and systematically. According to the FAIR principles, the evaluation demonstrates only 37.75% of compliance.

MeSH terms

  • Raw data
  • Workflow
  • Data quality
  • Tuberculosis
  • Computer science
  • Data sharing
  • Information system
  • Knowledge management
  • Strengths and weaknesses
  • Process management
  • Data science
  • Risk analysis (engineering)